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Showing posts with label coping with terminal illness. Show all posts
Showing posts with label coping with terminal illness. Show all posts

Wednesday, October 6, 2010

Fleeting Moments of a Day



Fleeting Moments of a Day
 
I stood sipping on a cup of coffee, staring out of the window, past my own reflection, to watch the river flowing along peacefully this morning. I heard the whistle of a train coming in the distance and as it neared, thought it sounded mournful. It has rained here the last couple of days and the chill in the air has made me cold right down to my bones. I don't know why it is but days like this seem to turn my thoughts to the negative. While standing there at the window this morning I thought it would be nice to be somewhere else or maybe even be someone else.
 
Later in the morning, as I was trying to get the newspaper out of the delivery box and blink away the rain drops that were filling my eyes, I slipped in a puddle of water and landed right on my ample backside, ripping my jeans. As I made my way back to my feet, I heard another train whistle approaching and felt the vibration of the train rumble down my spine. It was as if it was stroking each and every nerve ending as it slid down my back. I stood there in the rain waiting for the train to come into sight, feeling as if I was about to be flattened.
 
By the time I went back into the house, my thoughts were as jumbled as a jigsaw puzzle fresh from the box. Has my life been marked only by bills and receipts, faded photographs, and empty medicine bottles? What if I just fall backward into the past and never find my way back to the present. Looking around my home I realized that was not really what I had planned for my life.
 
Before long it was time for lunch and my mother, along with my elderly neighbor, sat at the dining room table. I served them sandwiches along with steaming bowls of vegetable soup. Both women are in their eighties and though my mother is suffering renal failure and a host of other ailments, she still has an almost radiant promise about her as she talks. She smiles easily and often as she tells stories about her life. I haven't been sure for several years now of whether the stories are truth or embellished fiction but they often cause me to laugh and today was no exception. The neighbor, on the other hand, is a person filled with a sense of impending gloom and doom. Maybe, I thought, I've been spending too much time with this lady.
 
"Is your granddaughter still wanting to have a baby?" The neighbor asked with a melancholy tone to her voice. "Boy, they're a lot of trouble once they get here."
 
"They cheer you up!" My mother said with a mischievous smile. "They smell like talcum powder and they keep you so busy chasing them you don't have time to think about sex."
 
"Sex! Good Lord! I was so busy taking care of people I didn't have time for..."
 
My mother interrupted her. "Oh, that's hogwash! You wouldn't have had all them people to take care of if you wasn't enjoying your old man."  The neighbor's face reddened.
 
"Well, did you get pregnant easy?" The neighbor asked.
 
"All I had to do was take my shoes off!"  My mother said boastfully.  "I had to start sleeping with my shoes on to stay out of trouble."
 
My neighbor's eyes widened and I burst out laughing. I felt cheerful, like myself again. Sometimes I get so caught up in tackling the care giving, the dishes, the phone calls, and the laundry that I feel like I am never finishing anything at all. The truth is, I'm doing pretty much everything, everyday, and doing it well.
 
This evening, watching an autumn sunset, I felt quiet and peaceful inside. I will always have chores, regrets, and probably doubts but I will also find laughter, moments of serenity, and rays of sunshine. Life is good.
 
© Dianna Doles-Petry
10/06/2010

Friday, July 9, 2010

Making Peace with the Inevitable


In December of 2007, my family buried a teenager. He was taken from us suddenly and I remember thinking how wrong it was for us to be saying good-bye to him when it should be the other way around. It just seems to be the natural order of life for children to outlive their parents. Still, we are not prepared to lose our parents either, no matter how old we are when it happens.

At some point over the last decade or so, my mother and I seem to have reversed our roles in life. I have become her caretaker and she has become quite childlike. Now there is no doubt that the end of her life is near and even though it’s a natural part of life and I’ve known it was coming for quite a while, I find myself struggling with my emotions. Each smile, each sunset, each sunrise, and even each tear seems so much more important now that it would have in the past.

My mother’s body has grown tired. Her kidney function is dwindling daily, she has congestive heart failure, bladder cancer, and dementia has robbed her of many memories she wanted to hold onto throughout her life. Still, she smiles easily and often. Yesterday her doctor informed me that it’s time to make a decision that cannot be put off any longer. Do we want her to undergo dialysis or just keep her comfortable and let nature run its course? At eighty-six years of age with so many health issues I don’t feel dialysis is an option.

On our way out of town after leaving the doctor’s office my mother went into a panicked state. I thought it was because of the conversation we had just carried on in during the office visit. She was looking down at the floor of the pick-up truck I was driving and jabbering but I could not make out what she was saying. “Mother, look at me and tell me what’s wrong!” I said.

She looked at me with a very startled expression as she replied, “My feet are gone. I don’t know what happened to them but they’re gone.” I couldn’t help but chuckle.

“They’re right there at the end of your legs,” I said trying not to laugh out loud. “Oh, Sh**!” she replied, and that was that. She is accustomed to riding in my much larger SUV and the truck is much smaller. There have been many moments like this one shared between us. She trusts me to take care of her. She trusts me to protect her. She looks at me the same way I looked at her when I was a young child and she was a vibrant mother nurturing her young.

My emotional struggles come from wanting to be honest with my mother without making her afraid. I want to comfort her without being negative. I want her to know as much happiness as possible while she’s here. If it makes any sense, I think we start the grieving process the moment we know we are going to lose a loved one very soon. I want, no, I need her to have peace of mind.

I am grateful that I am a very outgoing person. I know that I can reach out to my friends and family for support and advice when I need it. I am grateful that many people in my life make an effort to keep me smiling no matter what adversity comes my way. My mother has none of those connections anymore. Her whole world is here in this house. Her immediate family has all passed away or lives too far away to travel back here to visit. I have assured her that the people she has loved who have gone before her will be waiting on the other side for us, not just her, but us.

I’m sure one of the biggest regrets anyone has after losing a loved one is not having shared how much they were loved and appreciated. Sometimes they don’t share those feelings because they are so reserved they bottle up emotions. A lot of times though, people don’t express their feelings because they don’t want to say, “I hope you feel better soon,” when there is no hope for recovery.

My mother and I have not always seen eye-to-eye; in fact, we have had our share of ups and downs. We have totally opposite personalities. She never saw the need for higher education. I never seem to get enough education. She hated change, I thrive on change. She was content to stay at home and I enjoy travelling. I wanted my children to know her and spend time with her but I reminded her on more than one occasion that they were MY children and they would follow MY rules. I cannot say I regret the moments when we didn’t see things the same way. We learned a lot about each other when we disagreed and had to work things out to get past the hurt feelings or misunderstanding.

When we lost the teenager it happened so suddenly that there was no time to say good-bye. There was no time to express our love one more time or tell him how proud of him we had always been. He had no time to be held as he passed away or tell us how he felt about the life we had shared up to that point.

Maybe knowing that someone is dancing with death is a blessing in a strange way. There is time to remember the good times we’ve shared and talk about them with her. There is time to tell her that although I often thought she was too possessive and too strict, she did something right because I’m happy with the woman I see in my mirror every day and it was her impact on my life that made that possible. It’s a sad point to make but maybe the compassion and tenderness we give people when they near the end of their life is lacking when we take each tomorrow with them for granted before we know they are suffering from a terminal illness. Each day could the last one for any one of us.

Moments in life soon pass,
But the memories they made,
Like music play on and on,
As youth and beauty fade.

Words we left unsaid,
A touch we never gave,
Tears we cry in the still of night,
Are carried to our grave.



© Dianna Doles-Petry

7/9/2010