At some point over the last decade or so, my mother and I seem to have reversed our roles in life. I have become her caretaker and she has become quite childlike. Now there is no doubt that the end of her life is near and even though it’s a natural part of life and I’ve known it was coming for quite a while, I find myself struggling with my emotions. Each smile, each sunset, each sunrise, and even each tear seems so much more important now that it would have in the past.
My mother’s body has grown tired. Her kidney function is dwindling daily, she has congestive heart failure, bladder cancer, and dementia has robbed her of many memories she wanted to hold onto throughout her life. Still, she smiles easily and often. Yesterday her doctor informed me that it’s time to make a decision that cannot be put off any longer. Do we want her to undergo dialysis or just keep her comfortable and let nature run its course? At eighty-six years of age with so many health issues I don’t feel dialysis is an option.
On our way out of town after leaving the doctor’s office my mother went into a panicked state. I thought it was because of the conversation we had just carried on in during the office visit. She was looking down at the floor of the pick-up truck I was driving and jabbering but I could not make out what she was saying. “Mother, look at me and tell me what’s wrong!” I said.
She looked at me with a very startled expression as she replied, “My feet are gone. I don’t know what happened to them but they’re gone.” I couldn’t help but chuckle.
“They’re right there at the end of your legs,” I said trying not to laugh out loud. “Oh, Sh**!” she replied, and that was that. She is accustomed to riding in my much larger SUV and the truck is much smaller. There have been many moments like this one shared between us. She trusts me to take care of her. She trusts me to protect her. She looks at me the same way I looked at her when I was a young child and she was a vibrant mother nurturing her young.
My emotional struggles come from wanting to be honest with my mother without making her afraid. I want to comfort her without being negative. I want her to know as much happiness as possible while she’s here. If it makes any sense, I think we start the grieving process the moment we know we are going to lose a loved one very soon. I want, no, I need her to have peace of mind.
I am grateful that I am a very outgoing person. I know that I can reach out to my friends and family for support and advice when I need it. I am grateful that many people in my life make an effort to keep me smiling no matter what adversity comes my way. My mother has none of those connections anymore. Her whole world is here in this house. Her immediate family has all passed away or lives too far away to travel back here to visit. I have assured her that the people she has loved who have gone before her will be waiting on the other side for us, not just her, but us.
I’m sure one of the biggest regrets anyone has after losing a loved one is not having shared how much they were loved and appreciated. Sometimes they don’t share those feelings because they are so reserved they bottle up emotions. A lot of times though, people don’t express their feelings because they don’t want to say, “I hope you feel better soon,” when there is no hope for recovery.
My mother and I have not always seen eye-to-eye; in fact, we have had our share of ups and downs. We have totally opposite personalities. She never saw the need for higher education. I never seem to get enough education. She hated change, I thrive on change. She was content to stay at home and I enjoy travelling. I wanted my children to know her and spend time with her but I reminded her on more than one occasion that they were MY children and they would follow MY rules. I cannot say I regret the moments when we didn’t see things the same way. We learned a lot about each other when we disagreed and had to work things out to get past the hurt feelings or misunderstanding.
When we lost the teenager it happened so suddenly that there was no time to say good-bye. There was no time to express our love one more time or tell him how proud of him we had always been. He had no time to be held as he passed away or tell us how he felt about the life we had shared up to that point.
Maybe knowing that someone is dancing with death is a blessing in a strange way. There is time to remember the good times we’ve shared and talk about them with her. There is time to tell her that although I often thought she was too possessive and too strict, she did something right because I’m happy with the woman I see in my mirror every day and it was her impact on my life that made that possible. It’s a sad point to make but maybe the compassion and tenderness we give people when they near the end of their life is lacking when we take each tomorrow with them for granted before we know they are suffering from a terminal illness. Each day could the last one for any one of us.
Moments in life soon pass,
But the memories they made,
Like music play on and on,
As youth and beauty fade.
Words we left unsaid,
A touch we never gave,
Tears we cry in the still of night,
Are carried to our grave.
© Dianna Doles-Petry
7/9/2010